"We are a contradiction in packaging,for encased in our small bodies are not small minds,not small needs and desires,not small goals and pleasures, and not small appetites for a full and enriching life."
My husband, Matt, and I created this blog to share our lives as we raise our daughter Kaela who has been diagnosed with Metatropic Dysplasia, a very rare form of dwarfism. We currently live in Dexter, Michigan and have four beautiful children. William , Kaela, Wesley and Alaina.
Our hope for this blog is to share our experiences in raising a child with this rare condition. We also hope that those searching for information about Metatropic Dysplasia will find this blog or another positive source of information first before finding some of the accurate but dry and scary medical descriptions floating around online.
This is also a great place to connect with other families, groups and organizations related to Metatropic Dysplasia and other forms of dwarfism.