Making new friends

So we had our first LP event this weekend and it went great! We met so many great people. I was a little nervous about going, didn't know what to expect or who would be there, but it went really well. I believe the majority of people there were little people, most of them adults. There were some college aged lp young adults and a few younger ones, and then there was Owen and his mom and grandma. What nice people! Owen is absolutley adorable! His pictures are so cute, but no comparison when you can see him in person. Such a cutie! His mom Cat and grandma Jennifer are such nice people too! I'm so glad we met. It will be fun to watch Owen grow and hopefully get to know their family better as time grows and the kids grow up. Cat- you called dibs on Kaela- I call dibs on Owen. Ha ha.
Will had fun too. He made friends quick with some of the girls. They were great with him and so patient taking him up and down the stairs. Everyone was so welcoming and friendly. I wish I would have moved around more to talk to more people. Matt talked to a few people that I didn't talk to, as did I, so overall it went really great. I think it will be great to be involved for Kaela and us. I think it will be great for Will too!

So that was great and I am looking forward to the next event.

On another note, Kaela has her Ortho apt on Thursday. She gets xrays then too. I'm a little nervous because I know (since we can see it) that her back is starting to curve. I know that it's too be expected, I just worry because she's so young and I want to be sure they do things 'right.' It's hard being so far away from the real proffesionals in Metatropic (such as Dr. Boeber and Dr. McKenzie in Delware). But we go there in April, so at least it's not too far off. Anyway-Hopefully we will find out if we need to do bracing now or what. We have been so focused on her back I have forgot to ask about her legs. They are very bowed and I don't think they will get much straighter without surgery. Surgery is a scary thought right now...I know it's a reality for her, but no one wants their baby (baby meaning your child of any age ;) ) to have to go through any sort of surgery!

I'm so glad we have started this blog. We have already met some great people just writing here. For anyone that is new to our blog, check out Kaela's friends. There are some CUTE kids!! Check out little Cole too- he is so cute! I love his smile! He just glows in those pictures. We sure are lucky parents having these amazing little babies! Not only are they super cute ;), but I know from having Kaela in our lives that she has taught us so much! I look forward to sharing our stories about Kaela and William...and hearing all of yours!

Some good ones and some bad ones

I'm beginning to feel overwhelmed, like I can't handle this job I've been given...the job of parenting a child who has so many more needs. I know this doesn't come out right, because I love and adore my little girl (and my son) more then anything on this earth, but it just feels like too much. I still can't really understand why us sometimes. Why not us is really the more fair and real question...I mean really, why not us? We are good caring people who can love this child like no other, but why Kaela...This poor little girl is so sweet and innocent, why do this to her? I know and understand that things could be worse. I really do, on a personal level, I understand that...I've met those that have it worse and would probably take my problems over their problems any day...but at this moment in time that does not make it any easier. I feel like I'm about to break...but it's weird because I don't feel like it's been leading up to this. I mean I know I have some days where I'm more sad then others, but I don't feel like I've been in this downward spiral. Maybe because I don't have the time to think about it. I just start each day the same and do what I have to do to help provide for my beautiful family. I always will of course, I just feel like I need a moment for myself. To breath and RELAX. I worry so much that it becomes hard to sleep and then I have to come to work and then go home and care for my family...and those lovely doctor's apts. inbetween. I always wanted to be a mother, and love the job more then anything. It's by far my greatest acheivement and by far the most difficult job I have ever had. Then you throw all the things Kaela goes through and has to go through and it at times seems impossible to do. It's so hard to look at her and know all the horrible things she will have to go through and there's nothing I can do to prevent it. The spine surgeries, the PT on her poor tight joints, the people who point with their fingers or their stares, and make those obnoxious comments, and any pain she will go through both emotionally and physically. I know she will grow up with so much love. She will know what it feels like to be loved and know how it feels to love...but that alone doesn't take away all the worries. I come home and see this little girl who is so happy and sweet and just feel so guilty sometimes. I want her to have it easy, or as easy as it can possibly be for someone in this world. I'm so thankful for our son. Not because he's the 'average child' but because Kaela has him and us. I know what a loving sweet child he is and know he will look out for her. I suppose I don't know anything about the future for sure, but I belive it. I know the way they look at each other now and know that behind those eyes within that complex little body of theirs there is so much love to be shared. The way they laugh with each other and at each other tells it all. So I am grateful for having Will their too. (for Kaela and for so many other reasons too of course). I know we all have our moments or days..(or weeks..months). however long it takes, and maybe today is just mine. I know I will forever worry about both of my children. Isn't it somewhere in the unwritten handbook of parenthood- you worry worry worry. And usually for nothing, right? I can only hope that one day Kaela will look at me and say how happy she is and I will look back and say- all that worrying for what? I am not a negative person, I do believe my children will be happy because we will raise them to be proud of who they are and accept ourselves and others for the good and the bad. We all have our own issues...I love my little bean so much and wouldn't trade her or the things she comes with for anything...Those of you who know Kaela know this :) She's a doll. And those of you who are going through the same things...I'm sure can understand some of this more then others...the ups and downs...I know we will get through this. I know I will get through this and I KNOW Kaela will...that's what matters I suppose. Both of my children bring a whole new level of love to my life every single day. You wonder how could it get better...and then all of a sudden they do something as little as look at you with a half smile on their face and you realize...it only gets better. Each and every day it gets better. Watching your child grow (as fast or slow as it may be) is the most amazing adventure in life. So on that note...As hard as one day or one week may be....I know I have to be one of the luckiest people in this crazy world!

Blogging

So I would like to think that I'm good at this blogging thing (although I've never done it before) but as I look at other people's blogs I think I may be clueless. I love the blogs I've read through meeting people on line. People are so good at sharing their stories, which I know are not always easy. Sometimes it's strange to think you share such personal feelings and issues with people you have never even met before, but I guess it's important to help others and learn from others...and really for me in a lot of ways it's to hopefully help teach others to be more accepting and understand that altough some of us have many differences, we are really all the same.

We have our first LPA event on the 9th of February which I am super excited about. I think it's going to be fun and maybe even a little emotional too. I say emotional because for some reason I feel like when we are in a room with other children and or adults that are little it will make this whole experience more real for us. Maybe not, but sometimes I forget Kaela is going to forever be a little person. I truly have no problem with the fact that she will be little (I wish I could say that about all aspects of it, but when it comes to the health concerns there's no being okay with not okay things)....it's just that I have never known anyone who is a LP. I know Kaela will grow up to be the average kid though...the only thing that will not be avearge is her size....and maybe her heart...I have a good feeling about my kids :) Maybe that's the mom talking in me (ha ha)...but I think they will be good caring people. Lets hope at least :)

Anyway- I am very excited about going and meeting new people of any size really. I think Will is going to have fun too- I think he enjoys being around other kids. Matt's starting a play group with the kids in Feb. though, which will be really good for him...both of them really...

So our trip to Delaware is in a few months and I am getting more and more anxious by the day. I am also getting more axnious about meeting more people with Metatropic. I really hope that there will be at least ONE person at the Detroit Conference in June who has Metatropic. It would be really great to actually meet someone face to face! I would really love to meet anyone with dwarfism or a child with dwarfism face to face....I would love for Kaela to have lp friends growing up. I think it would be really good for her...I know I've said this many times before, I guess I really think it would be good for her. I better go tend to my children. Kaela's having fun rolling all over the floor shoving whatever fits into her mouth. She's such a cutie....and Will's off playing with his trucks of course! Who knew a boy could love his trucks SO much...no teddy bears in bed at night..only the biggest metal diggers you can find in the house surrounded by little ones...:)