Monday, July 14, 2008

Slacker Blogger

I know I know, I am a slacker.  I have neglected my blog and some of you have reminded me of this (thanks Rachel and Tonya)!
I will try to update you with a quick "what we've been up to" post.  
Lets see this past weekend was fun. We went to Hannah's 4th birthday party which was lots of fun!  They had lots of good food, a pool, swing set, sandbox, ride on toys and Will's favorite, a trampoline!  Will had a BLAST!!  Now I want to get a trampoline for our 4 ft yard. Okay it's not quite that small, but it is pretty darn small!  Thank you Catie for inviting us, we had a great time. It's so nice being so close to so many great families! We feel really lucky to have met so many wonderful families. We were lucky enough to see Tonya, Will, Knoah, Hannah and Jacob their too!! For those of you that haven't met them or Catie and her family, they really are as great as they sound on their blogs :) Actually better. Really fun and nice people.
So for those of you who remember, my sister was supposed to come home in June. She was going to be here for the end of the LPA Conference and for Kaela's b'day, but unfortunately she faked being sick and cancelled last minute.  Okay, she didn't really fake it but I like the reaction I imagine she has in my head :) Love you Rachie.  She really was sick 
and we were so sad that she wasn't able to come home, but we understand.  Now we don't know when we will get to see her, but hopefully sooner then later.  I would love to make a trip out to see her, it's just so expensive with all of us and trying to save for next years trip and our trips to the doctors. So feel free to send blank checks made payable to Matt or Sarah :) Just kidding...well sort of.

Art fair starts this week Wednesday in Ann Arbor. This is a HUGE event. People come
 from all over the country to sell their art, whether it is pottery, paintings, life sized 'people' (which are truly amazing they are so life like), and so many other forms of art.  I love going. I work right downtown so we get to enjoy it on our lunch break too. Hopefully my mother will be participating in it next year.  My mom is a very talented potter...but I will save that for the next post. I have some great pics to share with you, but have to figure out how to get them to stay tuned.

Last, but certainly not least, we saw Dr. Pauli last week.  It was really a great visit. 
Dr. Pauli is such a great guy. Cassie is wonderful too. I just love how he takes the time to go over EVERYTHING, to answer questions and he's so prepared. Most of you know how rare this is. I mean how many times have you walked into the Orthopedics office and they didn't have pictures of the films you just took a week ago (sometimes an hour ago), or they are missing some notes, etc...Well Dr. Pauli is always organized and stays right on track with the conversation.  He said Kaela looks GREAT and is doing great.  He said that he's never told parents of a Metatropic baby not to worry about the lung/breathing issues (most M
D babies are born with many breathing/lung problems) but he said we don't have to worry about that. Kaela is very healthy! We have to continue to watch her neck and spine on a regular basis, which is of course a big deal, but expected.  This reminds me I never posted about our apt. with Dr. MacKenzie and Bober from Delaware Childrens hospital. They were WONDERFUL too I might add.  Dr. Mackenzie wants Kaela to get an extension/flexion MRI soon and says she needs a new brace, which we knew, but otherwise looks good. I guess there was something on her xrays that showed a little concern so he wants to be sure
 her neck is stable. That's a little scary and frustrating because we had just seen the docs here literally a week before who said we didn't need that. UGH. But we see our docs here (Ortho) next week and Dr. Mackenzie should be emailing with our doc so this should get done. The neck is not something we want to mess with and it's very common for kids with Metatropic to have their c1 and c2 vertebrae fused at some point so we must watch this lets hope for the best with that.

I will keep you posted on that too.

Anyway-so much for not having a lot to say.  I will leave you with my cuties!


Danielle said...

I love the pictures!! And I'm glad to see I'm not the only blog slacker around! It sounds like Kaela is doing well and that you have such great Doctors taking care of her. It really is amazing to have doctors that truly know their stuff!

Anonymous said...

I didn't miss anything.. looks like you just blogged yesterday. :)The pic of the kids sleeping is CUTE!! Also, nice swing.. lol

Rachliedel said...

What the ****? Just kidding. I know this is a blog for children too so feel free to delete that after you read it. I want to come home soon. I wish I could come home when Becky comes home, but it's a bad time. Maybe I can even come home at the end of September. I will figure it out soon. They are both growing so much!! I miss and love you guys!

The Johnson Family 5 said...

I'm glad her dr. appts are going well and to hear that her lungs are a-ok is fabulous!! I lover her picture in the disney princess jammies...too cute!!

Alex said...

Glad that she is doing well! I am so jealous you guys get to actually hang out in real life! :)

Tonya said...

YEAH a post!!! J/K! It was great to see Will and Kaela, as well as you and Matt! Looking forward to the next time!!

Emily said...

Please link me:) I am so glad Kaela is doing well. It was nice to hear from you! I am going to link your blog as well.
Bennett's mom

Destini said...

Hey, I'm joining the blog slacker club too - the kids keep me busy in teh summer wanting to play outside all evening. I love the pic of the kids sleeping - Taylor and Trace always end up tangled up somehow too!

Jillsblog said...

I love the pictures. I think Will and JD would make good buddies. JD loves to sleep on the floor, though he insists on a race car sleeping bag. Good news about Kaela and her doctors. Hopefully we all have a good healthy year coming up!!!

Jennifer said...

What great news about Kaela! I'm so glad that she's doing so well. Your children are wonderul.