I will try to update you with a quick "what we've been up to" post.
Lets see this past weekend was fun. We went to Hannah's 4th birthday party which was lots of fun! They had lots of good food, a pool, swing set, sandbox, ride on toys and Will's favorite, a trampoline! Will had a BLAST!! Now I want to get a trampoline for our 4 ft yard. Okay it's not quite that small, but it is pretty darn small! Thank you Catie for inviting us, we had a great time. It's so nice being so close to so many great families! We feel really lucky to have met so many wonderful families. We were lucky enough to see Tonya, Will, Knoah, Hannah and Jacob their too!! For those of you that haven't met them or Catie and her family, they really are as great as they sound on their blogs :) Actually better. Really fun and nice people.
So for those of you who remember, my sister was supposed to come home in June. She was going to be here for the end of the LPA Conference and for Kaela's b'day, but unfortunately she faked being sick and cancelled last minute. Okay, she didn't really fake it but I like the reaction I imagine she has in my head :) Love you Rachie. She really was sickand we were so sad that she wasn't able to come home, but we understand. Now we don't know when we will get to see her, but hopefully sooner then later. I would love to make a trip out to see her, it's just so expensive with all of us and trying to save for next years trip and our trips to the doctors. So feel free to send blank checks made payable to Matt or Sarah :) Just kidding...well sort of.
Art fair starts this week Wednesday in Ann Arbor. This is a HUGE event. People come
from all over the country to sell their art, whether it is pottery, paintings, life sized 'people' (which are truly amazing they are so life like), and so many other forms of art. I love going. I work right downtown so we get to enjoy it on our lunch break too. Hopefully my mother will be participating in it next year. My mom is a very talented potter...but I will save that for the next post. I have some great pics to share with you, but have to figure out how to get them to upload....so stay tuned.
Last, but certainly not least, we saw Dr. Pauli last week. It was really a great visit.
Dr. Pauli is such a great guy. Cassie is wonderful too. I just love how he takes the time to go over EVERYTHING, to answer questions and he's so prepared. Most of you know how rare this is. I mean how many times have you walked into the Orthopedics office and they didn't have pictures of the films you just took a week ago (sometimes an hour ago), or they are missing some notes, etc...Well Dr. Pauli is always organized and stays right on track with the conversation. He said Kaela looks GREAT and is doing great. He said that he's never told parents of a Metatropic baby not to worry about the lung/breathing issues (most M
D babies are born with many breathing/lung problems) but he said we don't have to worry about that. Kaela is very healthy! We have to continue to watch her neck and spine on a regular basis, which is of course a big deal, but expected. This reminds me I never posted about our apt. with Dr. MacKenzie and Bober from Delaware Childrens hospital. They were WONDERFUL too I might add. Dr. Mackenzie wants Kaela to get an extension/flexion MRI soon and says she needs a new brace, which we knew, but otherwise looks good. I guess there was something on her xrays that showed a little concern so he wants to be sure
her neck is stable. That's a little scary and frustrating because we had just seen the docs here literally a week before who said we didn't need that. UGH. But we see our docs here (Ortho) next week and Dr. Mackenzie should be emailing with our doc so this should get done. The neck is not something we want to mess with and it's very common for kids with Metatropic to have their c1 and c2 vertebrae fused at some point so we must watch this closely...so lets hope for the best with that.
I will keep you posted on that too.
Anyway-so much for not having a lot to say. I will leave you with my cuties!